Face Everything and Rise (FEAR)

ABOUT THE ORGANISATION

Face Everything and Rise (FEAR) supports children and adults who receive artificial nutrition via a feeding tube, or receive treatment via a central line. Tubes and lines can be via nose, stomach, bowel or chest, and mean that an individual needs to be  connected to a pump for more than 12 hours a day. Practically, this makes leaving home feel difficult and daunting. There is also an emotional impact, with both children and adults feeling cut off from normal life and unable to participate in many activities.

Together, these factors leave individuals isolated and missing out. FEAR tackles this in a variety of ways, including one-on-one support for individuals and their friends and  families, enabling them to talk through practicalities and emotions, and to identify coping strategies. The organisation also assists individuals in taking part in activities that many of us take for granted. This includes swimming using specially adapted drysuits, sailing, and dry-slope skiing.

‘EDDIE’ THE CAMPER VAN

We provided £30,000 to support the purchase of ‘Eddie’, FEAR’s first specially-adapted camper van. The van travels the country to festivals, concerts and outdoor events. It is fully adapted to support an individual who needs artificial nutrition or intravenous treatment while they are away from home. This means individuals can attend events  knowing there is a sterile, safe and comfortable space within which they are able to connect and disconnect lines. 

Additionally, the organisation will utilise Eddie to make swimming more accessible to a greater number of people. Eddie removes many of the practical barriers to attending events that individuals face, allowing them to experience activities with family and friends, build their confidence, and make lasting memories.

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